Paume, co-founded by a Kedger, is helping in the fight against Charcot disease (ALS)!

THE BIRTH OF THE PROJECT

This year, the founders of PAUME (founded in 2018) have decided to add a new dimension to the brand - a charitable dimension - by offering organic cotton T-shirts made in France, with all profits going to Association for Research on Amyotrophic Lateral Sclerosis (ARSLA). ARSLA has been fighting ALS, also known as Charcot's Disease, for 36 years, since 1985.

As Marine explained to us, the decision comes about from an experience in her family; "In September 2020, my brother-in-law, then 36 years old and father of three children, was diagnosed with ALS (Charcot's disease). This news was very difficult to accept: to understand the progression of the disease, to learn that it is incurable, and to see such alarming statistics. Manon and I decided that Paume could help ARSLA, the association that fights against this disease. So we contacted the association and proposed that Paume’s profits be given to the association."

In addition to providing support and funding research, Marine and Manon want to raise awareness of this cause and help ARSLA.

PAUME + ARSLA

Paume wants to help support a cause that is particularly close to one of the founder’s heart: assisting patients and financing research in the fight against Charcot's disease, a disease that remains incurable today. 

ALS is a disease that affects the body's motor neurons. It eventually leads to paralysis of the muscles and affects the ability to speak. Sadly, it is ultimately fatal. Patients must live with a body they gradually lose control of as the disease progresses.

"This disease, which is almost unheard of, affects more than 8,000 people in France today. This is why it seems crucial to us to talk about it, provide financial support for the cause, and to try to raise awareness amongst those around us and our community. In this regard, we are pleased to announce our partnership with ARSLA, the first association that engaged in the fight against the disease and aimed to provide support to patients. For 36 years, the association has been involved in all aspects of the disease and has made great strides in the knowledge of the disease, as well as in the treatment and quality of life of patients.” - Marine and Manon. 

FIND OUT MORE PARTICIPATE IN THE PROJECT

YOU, TOO, CAN HELP IN THE FIGHT AGAINST ALS!

PAUME is offering organic cotton T-shirts Made in France, with all profits going to ARSLA. The price of the T-Shirt is 45 euros, of which the association will receive 100% of the profits, around 20 euros - Pre-order yours on paumeparis.com (until 13 July)! 

PREORDER YOURS 

Follow PAUME, Marine, and Manon on social networks:

• PAUME - Instagram: https://www.instagram.com/paume_paris/ 
• Marine Bohec - LinkedIn: https://www.linkedin.com/in/marine-bohec-1b483555/ 
• Manon Pourailly - LinkedIn: https://www.linkedin.com/in/manon-pourailly-915842b4/ 

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